TN-L Mailing List
WHAT IS TN-L?
The Internet has proved to be a godsend for facial neuralgia victims, since it is a very convenient way for such a small and scattered group to communicate. This is particularly true for people with facial neuralgia disorders, who often find it difficult to talk and are therefore very limited in their communication. Mailing lists, in which e-mail is circulated among the members, have been found to be a particularly useful forum. At the moment, there is one mailing list, TN-L, specifically for people with facial neuralgia disorders.
TN-L is an electronic mailing list devoted to the discussion of Trigeminal Neuralgia and related facial neuralgia disorders. All email sent to TN-L is circulated to all members of the TN-L mailing list. Membership is free and it is easy to join. TN-L is not funded by any source. It is hosted by the University of Arkansas which graciously allows TN-L to use its computers.
Email from TN-L is archived at TN-L Archives, a password protected web site where email from TN-L members is accessible. A search tool makes it easy to find information in the archives. You must be a member of TN-L to access this website.
The goals of TN-L include:
WHAT TN-L IS REALLY ABOUT
This is Polly, the founder and moderator of TN-L. With compassion and hope, she guides and helps connect members to each other. She keeps us on topic and gently reigns us back when we're not.
And here, another TN-L member explains the special possibilities of TN-L..
And to get an even better idea of how special TN-L is, view the TN-L Slide Show that was presented at the 1998 TNA conference:
Send an email message
sub TN-L your name
For example, Jane Doe would send
sub TN-L Jane Doe
After you receive an email from TN-L acknowledging that you've been added to the TN-L mailing list, you will begin receiving any email sent by members of the list.
If for some reason
you have problems joining TN-L, contact Polly Potter at
Send email to: firstname.lastname@example.org
Please note that the email address for sending mail to the group is different from the address for joining the list.
When you create a new message (not replying to a message), you should specify a subject to describe what your message is about, much like you do in an email message. To make it easier for readers to decided whether to read your message, it's a good idea to keep the subject line short and use key words, for example:
Subject: Gamma Knife - Side-effects?
Often people want to discuss non-tn related things...it's natural as people become online friends. Some members prefer to get only email about facial neuralgia related topics. To make it easier to sort out which messages are "Off-topic," use the keyword "CHAT:" as the first word in the subject line. The topic keyword of CHAT: must end with a colon, followed by a space, before adding your own particular subject keywords. For example:
Subject: CHAT: My Day at the Beach
Members who prefer not to read CHAT email can send a command to exclude any email that begins with CHAT: See
UNSUBSCRIBING FROM TN-L
Send an email message to email@example.com with this in the body of the text:
AN EASY WAY TO READ TN-L EMAIL USING YOUR WEB BROWSER
For some people, the volume of daily email from the TN-L mailing list can be overwhelming. Others don't like the risks of getting a computer virus through email. An easy solution is set your TN-L membership so that no email is sent directly to you and to use your Internet browser (e.g. Netscape, Internet Explorer) to read TN-L email on the TN-L Archives.
Email from TN-L is archived at TN-L Archives, a password protected web site where all mail from TN-L members from 1996 is available only to TN-L members through a searchable web interface. These archives contain valuable information that TN-L members have shared over the years and can be an excellent resource in making connections with people and finding information on treatments, side-effects, specialists etc. A search tool makes it easy to find information in the archives. You must be a member of TN-L to access this website. The TN-L Archives can be accessed at:
e-mail comments / questions to
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Facial Neuralgia Resources