FACIAL NEURALGIA
RESOURCES

"The Scream" by Edvard Munch

Together, we can make
a difference.

facial-neuralgia.org

 

  

 

   

Share Your Experiences
with Facial Neuralgia

I hate this disease. I hate what it is doing to someone I love and I hate what it is doing to the family. I hate being helpless in the face of someone's pain. I hate it. -anonymous SO

It is so important to learn how others survive these terrible disorders. If you have a facial neuralgia such as Trigeminal Neuralgia, or know someone who does, please consider sharing your experiences. If you want to tell your story please enter it in the form below.  

To protect your privacy, your name and email address will not be given to anyone without your permission.  If you include your full name, we will only publish your first name.  You can choose to keep your email address private or not. If you choose to keep your email address private, if someone wants to contact you, they will have to email us and we will notify you. 

Name                
Email Address   
City                        State      
Country:          

Keep my email address private: Yes   No

I wish to remain anonymous Yes    No
If you want to remain anonymous, please assign yourself a "nickname," so  people can refer to your story. 
Nickname: 

Diagnosis ( Please select all that apply.)

TRIGEMINAL NEURALGIA GLOSSOPHARYNGEAL NEURALGIA
ATYPICAL TN     NERVUS INTERMEDIUS (GENICULATE NEURALGIA)
ATYPICAL FACIAL PAIN VEGAL / SUPERIOR LARYNGEAL NEURALGIA
ANESTHESIA DOLOROSA OCCIPITAL NEURALGIA 
NICO             OTHER

Treatments:

Comments:   

              
MY STORY
Please feel free to tell your story in whatever way you want although it would be helpful to include your experiences with different treatments you've tried and whether they were successful or not.



  


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